Sunday, May 29, 2011

Out of Joint: a review

I finished my papers finally and, while I'm not super happy with them, I think they will do. But that left me with some free time yesterday. I know, weird right? So I picked up a book that my boyfriend checked out of the library - "Out of Joint: A Private and Public Story of Arthritis" by Mary Felstiner.

For the first time in years, I picked up a book and devoured it. Somehow I think it was because some of it was so familiar.

It's a great book, but I found it really difficult to relate to... because much of the book centered around how things changed for Mary and how she missed her life before RA... And I don't have that.

When I remember, I seldom remember pain - or, if I do, it is a lot less intense, I'm sure, than it actually was at the time. But that is all that I remember really. How many people have lots of memories from before kindergarten anyway?

Her book is good, and definitely worth a read - especially for our significant others. I'm really excited for when my boyfriend gets to that book, because I think it'll help him understand me a little better - how I don't like to talk about my arthritis, how I can still be so worried and trying to help others despite my own condition, and many of my fears.

Sunday, May 22, 2011

Mmmm Humira

I was approved for my free Humira! Yay! I'll get my shipment on Wednesday, so that'll be good. I'm definitely starting to ache again today, so hopefully that will help.

I got a promotion at work which is awesome, but it requires me to work a little more especially now that one person just quit with no notice. It's a salaried position so that's nice too. Too bad there's no insurance.

I have two papers to finish by the end of the month. Other than that, I'm just counting down the days until the bboyfriend and I move in together. I'm excited for many reasons, but I think it'll help me feel better physically since he seems to have that sort of voodoo magic over me. It's kinda awesome.

I'm ready to go back to bed, mmm. Silly work interrupting me.

Monday, May 16, 2011

What's it like to be sick all the time?

To find out the answer, check out my second post with Achieve Clinical: 

Friday, May 13, 2011

Don't stop, get it, get it

Well, the weather here in Wisco has been beautiful. And I wish I could be out enjoying it. I'm dealing with a cold. And we've been under an air quality alert, meaning those with compromised immune systems should be careful how much time they spend outside. Lame.

But Tuesday, I went to the gym and I busted that butt... while playing sudoku. Aw yeah. I was able to run a little bit and bike like crazy for like 20 minutes. And then I set up an appointment with a physical trainer for this coming Thursday. I'm a little apprehensive about working with a guy versus a girl, but he also has arthritis so that kind of makes up for the worry. He really seems like he knows what he's talking about, so I'm excited.

The last two days, I have felt like poop. I want to sleep - and have - a lot more than I should have. I keep trying to fall asleep wherever I am, so that kind of sucks. Hopefully that and my cold clear up soon.

BUT! The super exciting news is that I just got promoted to front desk manager at work. So I'm pretty excited about that. Well, as excited as I can be with being so tired. At least I'm good at faking excitement and energy so I don't look sluggish.

I should have a new post up over at the Achieve Clinical site soon, and will put up a link once it's active.

Saturday, May 7, 2011

My first Humira shot

Okay, so I'm thinking I'm just going in to get my TB test read and get the financial assistance paperwork to fill out on Thursday, right?

Well, I ended up with a free shot of Humira too.

I just would like to say that I hate injections even more than getting blood drawn. They're far more painful physically, that's for sure. Well, the Humira is no exception. Because it is refrigerated, I'm sure that adds to the funky stinging - but the nurse also explained that it's a completely different pH than the human body, so the stinging pretty much is always going to happen.

My initial reaction was to pull that sh** right out of my leg, but you have to hold the pen-needle in your skin for 10 seconds. I made it, but it was tricky definitely. I'm glad that there's only one shot every two weeks cause who knows if I could handle that for longer. But I'm willing to try anyhow. So that counts for something, right?

At least I know other people on that drug to talk to if I think something is going wrong.

Wednesday, May 4, 2011

Guest Blogging?

So, a few of us health bloggers have landed a guest gig over at the Achieve Clinical website. My first post went up yesterday. If you know my back story, it's pretty much the same, but with some new information added and such. I like it :)

It's almost been 2 weeks since my last mtx dose. And I'm dealing with some withdrawal symptoms, but I don't feel like a zombie anymore, so I think that's a fair trade.

I had the start of a TB test yesterday and will go in tomorrow for them to read it. I also will need to figure out if I can get my Humira free, cause I'm a poor girl. And right now my co-pay is too much to be fully covered by the co-pay card they have. So that'll be fun. Because of all of that, I'm not sure exactly when I will start, but hopefully soon.

I just banged the crap out of my knee on the coffee table in the lobby at work. Bad decision, oh man.