Saturday, July 30, 2011

A really really vulgar rant

I just found out that someone tried to steal money from my bank account via hacking my PayPal account.

So, understandably, I need to rant. Please forgive this post. /end apology/

SERIOUSLY?!?

Out of all the people, you went for the girl with a crappy account balance eh? Wanna know why? Because I'm horribly sick, have been and will be all of my life. I will probably die 10 years earlier than anyone else I associate with, because of all the fucking medications I pump into my body in an attempt to be 'normal' - something you probably are with the exception of trying to rip people off. You probably don't have to REALLY think about if you need to pee bad enough to actually get out of bed and hobble the 15 feet over to the bathroom. You also probably can do things with a normal schedule, not having your body change how it feels and what it can do every five minutes. You probably have never known the horrors of waking up to a huge swollen face like a sumo wrestler and not really being able to see because your arthritis is flaring up in your face.

You also probably don't go to school full time and work full time. You don't know what it's like to have to balance so many things at once, especially when your health is shit. If you get the flu, you probably stay home for a day and then are fine. If I get the flu, I have no choice but to work, go to school, and deal with my broken body. I probably then get even sicker, and end up spending the days off I DO have in bed trying to recover.

The economy sucks, sure. Maybe you don't have a job, so all you do all day is try to hack into accounts and have them purchase fake iPhones for $700 dollars.

But, you know what?

I work my fucking ass off for MY money. Being sick all the time isn't cheap, and neither is needing crazy amounts of medication or going to doctors and dentists once a month. So next time, so fuck with someone who has a cushy job and won't miss the money. I have rent due on Monday and hopefully this all works out. If not, you're gonna fucking get it.

/end rant/

I'm gonna go to the gym now.

UGH.

Wednesday, July 20, 2011

Fun Links

If you haven't taken a look at my team's page for the 2011 Run/Walk to Irish Fest coming up in August, please head on over and take a look. The money goes to help our cause. Even if you're not in the area, we're always looking for donations!

Did you know that there is a rap song about RA? Well, there is! Head on over and take a listen. MOEtivation samples a Nina Simone song, which I think just makes it that much better.

Opportunity, one of the rovers up on Mars right now, apparently has an arthritic shoulder problem. Who knew machines could get arthritis too?

The Dutch are currently working on an implant to be put in the neck that could help control inflammation for RA.  Right now they're moving into a possible trial phase. I think this could be an interesting device, but it is hard to work to cure a disease when you don't know the cause.

Did you ever wonder where jacuzzis come from? Rheumatoid arthritis and wine. Mmmmmm.

Sometimes it feels like you need a little luck to get through bad days. These jerks have hogged all your luck. Nah, but seriously, that is a pretty neat story.

Monday, July 18, 2011

2011 Run/Walk to Irish Fest in Milwaukee

HEY YOU GUYS!

Do you want to do something awesome?

Good!

Please click this fun link here and take a look my team's page for the 2011 Run/Walk to Irish Fest in Milwaukee, Wisconsin. If you're local, consider signing up for my team! If you physically cannot - or are too far away - think about donating, eh? If you're not in the position to do either, then just root on my team and try to spread the word :)

The event is sponsored by Abbott Immunology and we all know how much I'm in love with Humira - especially now that I figured out stomach shots are SO much better than thigh shots. Yay!

Sunday, July 17, 2011

Chicago (again!)

Wow. I am exhausted...ish. I should be WAY more exhausted than I am though I think. So this Humira stuff must be working :)

I did not get called back for The Voice. I hit a flat note in my song and my eyes met with the judge in a horrifying moment and we both knew I wouldn't be anyway. I say, oh well! I tried out and it was fun (aside from being a mere FIVE hours of basically standing the whole damn time). It doesn't make sense for me to go be on the show right now anyway. I'm finally really happy with most everything going on and don't want it to change.

But the boyfriend's birthday in Chicago was pretty fun. We went down Friday and enjoyed the Brookfield Zoo. I was super proud of us that we remembered to bring the sunscreen :)  Then we had some delicious Connie's Pizza before getting up early Saturday for me to stand in long lines and him to wander around Navy Pier. It was a tense, and yet relaxing, few days off.

I'm doing my Humira shot tonight and, hopefully, miss some of the fun injection effects while I sleep.

Tomorrow I have a fun list of things to get done before work. I'm hoping that I can get it done quickly and be kind of lazy... although I kind of really like playing housewife. And lately I've been dressing the part, in my cute retro outfits.

One of my friends got a tattoo today and I kind of really want one now! I'm looking at getting Arabic writing, but am unsure what to get. But all the words I have written down are awesome, like "strength" "fighter" "perseverance" and "determination" which Angelina Jolie actually has on her arm. Cool.

Also! Please check out my latest post over at Achieve Clinical filled with summertime tips for us spoonies :)

Wednesday, July 6, 2011

The Voice

Have you seen the show "The Voice" ? It is American Idol-esque, except run in the beginning completely based on your vocal abilities alone. The auditions are blind, in that the judges do not face you when you enter and instead turn around only if they want you on their team. Oh, and the judges? Just people like Christina Aguilera, Cee Lo Green, Adam Levine, and Blake Shelton.

'Sha, it is kind of a cool show.

Chicago auditions are July 15th & 16th. I magically happen to have those days off because of the boyfriend's birthday... So yesterday, I may have signed up for auditions on the 16th.

I am so freaking excited right now. And more nervous than I've ever been in my whole life.

If I go and I fail, then whatever, I blew a day hanging out on Navy Pier in Chicago. Not the end of the world. But I'm almost more nervous about making it than failing. If I make it onto the show, this could be the start of a whole new life for me - one that I've known since I was five that I wanted to pursue. But my disease limits what I can do with instruments, and even my piano playing is not going... well, it's basically non-existent for right now.

So I have ten days left to get ready. I have to prepare two songs and I'm already completely baffled as to what to do. But I kind of know what I want to wear, so at least I have something in mind? Truth be told, I'm not sure how much I will post between now and then, but if I get called back, I will definitely let everyone know!

Monday, July 4, 2011

Writing Prompts

Okay, not that someone who is sick needs them, but I discovered a page of writing prompts today that I really like. You can view the site here, and click 'get inspiration' for new prompts. I've gone through several already and I love them. So, in an effort to get myself to write more, I shall be posting some responses to these prompts and maybe others comment their answers too and we can all have fun with it!

The one I just saw (and of course clicked through, d'oh!) went something like this: "The world is going to end tomorrow unless you get a giant tattoo covering your entire back. What do you get?"

I thought about this one for a while. I have wanted to get a tattoo but am worried about the swelling afterwards and also not super excited about needles... or how the tatt will look when I'm old. I love peace signs - they are probably my favorite thing ever. Yup, hippie chick here. And yet, a giant peace sign wouldn't cut it, you know?

I want this:



:)

Sunday, July 3, 2011

Happy 4th!

I hope you guys enjoy your holiday! Make sure to have sunscreeeeeen!