Wednesday, October 26, 2011

What is it like to be stuck at home?

On any given day, everyone wants to stay home. It would be nice to stay at home, lying around all day and watching TV.

But what if that was all you could do?

Not so fun huh?

Today is the first day out of the last few that I have felt well enough to do really anything. I did go to work the last two days, because I have to being in training still, or I'd lose my job. Not an option. It is hard to explain to my friends what exactly it feels like. But it's like being trapped in your own body and there's nothing you can do about it.

On waking up Monday, I could barely move. It got worse before it got better, and Monday night I was limping pretty good at work... which is okay, since I get to sit mostly. Tuesday was a little better, but still I was too swollen and in pain to do anything until like 2pm - and then the big thing I did was shower, something I physically couldn't do Monday. Yay.

When showering is your big accomplishment, it's a sad day.

All of this because I tried to taper my steroids down one milligram. It makes me mad that I am so dependent on them, but at the same time I am thankful I am not more dependent on them like many others I know. 5mg a day is much better than 50 or more. But I know one thing - I'm not going to make that mistake again.

Monday, October 24, 2011

Tapirs are cute - tapers are not

I'm on day four of a 1mg taper of prednisone. It sucks. I'm entirely too tired and entirely too sore. This sucks.

But these guys are adorable:



Awwwwwwwww.

Wednesday, October 12, 2011

PFAM: World Arthritis Day Edition

Happy World Arthritis Day (if that can be a happy thing)

Sadly, just like the last time I hosted PFAM, I barely got any entries. I am not quite sure why, but oh well I guess. It seems like a lot of people who used to participate in PFAM don't anymore unless the topic REALLY moves them.

The sole post that I have to share today is from Kathy over at FibroDAZE. She has gone through many changes in the last few months, and as such feel like she is living in her very own soap opera. When new medical issues pop up, life can definitely feel that way. Thanks Kathy for being wonderful and participating in this edition of the PFAM!

Late last month, I posted about my own personal dietary changes and how I thought they were helping. My suspicions are all but confirmed. It is very difficult to cut out staples in diet, like dairy products and gluten-full breads and such, especially for me. My father's side of my family is Italian and, while I did not know him growing up, my mom always encouraged me to embrace my Italian heritage. It is driving me crazy, not eating tons of breadsticks soaked in garlic butter and parm cheese... Or, likewise, one of my favorite things about Wisconsin is frozen custard. We didn't have this on the west coast/northwest, and I fell in love.

At least the best part about it is that I don't really crave those things that often anymore. One of the wonderful people who really encouraged me to look at alternate grains is a man I have barely interacted with, but who has shown me a lot about nutrition - Chef Brad. My boyfriend and I just think he is wonderful and he has helped the both of us handle trying to eat healthier.

When I have added in dairy or gluten, I can tell how horrible my body feels. After eating some gluten the other night, I felt as though I had a body hangover the next day. My finger joints were swollen, and my knees were horrible. I could not go to classes and I was lucky that I was able to go to training at my new job in the late afternoon/evening. Likewise, adding dairy to my diet just creates tummy troubles - the gurgles, the heartburn, upsetness, and even more fun.

While it will be hard to stick to, I know that this change is right for me. I have felt so much better between that and starting my new job. The three minutes of delicious breadstick eating is not worth the joint pain and stomach issues.

I'm just glad I can still eat potatoes :)

Tuesday, October 4, 2011

Repost: PFAM Call for Submissions

I just want to repost this so it stays at the top!

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Hey! I had so much fun last time, I was really excited to get in on hosting this edition of Patients For A Moment, or PFAM.

Recently I have gone through some interesting life changes. In late June/early July, the boyfriend and I moved in together. In August, I had oral surgery. And now here's September, and not only am I beginning to eat healthier, but I'm also changing jobs in a few short weeks.

So with that in mind, here's the topic for this edition of PFAM:

What changes have you made for the better this year, and have those decisions helped as you thought? If so, yay! If not, what do you wish was different about the outcomes?

Personally, all of my decisions have worked out well and I'm excited to see what happens with the upcoming changes I'm making. But we will see.

Email me your submissions by 11:59pm on Sunday, October 9th to walters4-at-wisc-dot-edu. Your email should include:

1. Your name
2. Your blog's name
3. Your post's title
4. Your post's URL
5. Awesomeness

I'm excited to read about the changes you've made in your life!