Monday, November 26, 2012

Day 26: I'm a #rheum pimp #NHBPM

But only for my friends! Today, I wanted to take time to share with you my favorite blogs, facebook pages, and twitter-ers regarding juvenile arthritis, Still's, and the #rheum or chronically ill community in general.

Laura is an amazing resource for information regarding Still's and she has done a lot to help me on my journey. She recently got engaged as well and we are both at very similar points in our lives. It is really great to have someone so supportive and understanding as she is. You can follow her blog here, Twitter here, and facebook here.

Mia is the cutest toddler I know and she has been dealing with Still's for too long. Good news is that she just came off of steroids too!

Parker has been dealing with his Still's for coming up on three years now. It has been really neat to watch him grow up though obviously I wish it was under better circumstances.

Natalie hasn't blogged in quite a while but she's pretty active on Twitter. She is an OT living with Still's, anemia, and fatigue - which is nice to see! I feel like if I lived in the UK, she would be the OT I'd want because she would now how these things affect our bodies.

Trish over at PhyzzEzee was diagnosed with Still's in 1949 and still continues fighting it today. She is a great resource for information and you can follow her on Twitter here.

Sally over at King Arthur & the Creaky Knits of the Round Table has Still's and plays the ukulele too! She also knits if you couldn't tell. You can follow her on Twitter here.

Emily over at Chronic Curve is a college student on Remicade for her Still's. You can follow her on Twitter here.

My friend Joanne made an awareness video a few months ago and is now blogging! She's about the same age as me and I think it's incredibly important that young adult chronicle their battle with rheumatic diseases. There just isn't enough information out there on young adults with RA. You can follow her on Twitter here.

Speaking of, Joesph is in a similar situation. His RA battle has included being diagnosed with Raynaud's as well. He's from across the pond so it has also been interesting watching him handle the NHS. You can follow him on Twitter here.

A to the A over at Wanton or Wonton is engaged like me and trying to navigate the addition of lupus to her numerous health issues including RA.

My friend over at Secret Raindrops is amazing. She has recently gone through a divorce and is working on the boundaries of still living in the same household (Hurricane Sandy put a squash on her moving plans) and dealing with her ex's family - all of whom doubt how serious her RA is. She is one of the strongest people I know. You can follow her on Twitter here.

My friend Stacey is likewise amazing. Not only does she deal with multiple illnesses including RA and fibro, her sweet daughter Jordan has shown symptoms of JRA since age 2. They are some of the first friends I made when I did finally reach out into the RA/JRA community and they have become dear friends. They live near where the JA conference will be held this next summer and I'm hoping we can all make a trip out to Disneyland. You can follow Stacey on Twitter here and Jordan's Pink Angels here.

Emily over at Mama Sick chronicles how difficult it is to be chronically ill when you have no insurance and no money :(  You can follow her on Twitter here.

Britt over at The Hurt Blogger recently got a gig writing for Creaky Joints! How cool! In the last year, she has done a lot to further understanding of patients with rheumatic diseases including speaking at the Med-X conference. You can follow her on Twitter here and facebook here.

Here is a list of great people to follow on Twitter:

  • Sarah is on Humira and plays college softball. She's pretty cool.
  • Kary lives in the UK with RA...
  • So does Katrina...
  • And Barb who also blogs at Walking in My Shadow
  • Heather is the first Twitter friend I met in real life and she's like a sister to me. And she knows just about everything about getting a 504 plan for kids set up!
  • Dawn is a gluten free, paleo chick with spondylitis who loves baseball and the Detroit Tigers. We totally have a lot in common.
  • Sporks is a RA fighter who loves NPR, video games, and cooking. She also shares the most hilarious things I've ever seen.
Here is a list of awesome people and groups on facebook:
If you made it to the end of this post, you deserve a damn treat! There are just so many resources out there available to us and so many dealing with illnesses that, even if they're not exactly what we face, know how we feel - the loneliness, helplessness, and prednisone munchies. I could have included so many more people here than I even did but had to restrain myself so if you're disappointed you aren't on here don't be sad!

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