Monday, January 14, 2013

Defying Arthur

2 weeks into a new year and I haven't said anything yet? The shame!

In complete honesty, I'm having a tough time right now. I'm getting over a flare, interviewing for a job working with a university as an admin support with a department dealing with stem cells, and dealing with my depression issues not improving. They may even be getting worse.

Oh, and I'm planning a wedding too!

I've been doing a lot of research and when I'm done I'll share with you guys. I have a large amount of anger dealing with Arthur, with the loss of Laura, and ignorant people. Eventually I may talk about it, but it's too sore to even talk about with those closest to me.

Instead, right now, I'm taking more inspiration from musicals (go figure). I declare 2013 the year I kick Arthur's ass. Who's with me?


3 comments:

  1. I'm sorry you're having a rough week. I know the feeling. :( Hopefully things will be on the upswing soon-- and good luck with the interviews!
    On the topic of research, have you looked into auto-inflammatory conditions at all? My rheumy thinks my persistent inflammatory arthritis might be closer to Stills/JIA than RA (and thinks these are part of the same set of diseases as Familial Mediterranean Fever and TRAPS, among others). She has me trying colchicine now (and mentioned Akinra as a possibility, but daily injections scare me). I'd love to chat sometime about your experiences on DMARDs/biologics.

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    1. Oooh that is an interesting idea! I can definitely pop to the medical school library for a peek Wednesday after my interview and see what I can find. You can definitely feel free to email me - kirsten @ notstandingstillsdisease.com

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  2. on top of all that you are handling this can be a rough time of year following the holidays,etc. I hope you are feeling better soon and can begin to resolve some of the issues you are facing...take care. Nan

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