I have had a few people ask me about what people and organizations to follow in order to help share their awareness posts so without further ado please check out these wonderful people!
- Arthritis National Research Foundation
- The Blue Ribbon Project
- The International Still’s Disease Foundation (mostly focused on adults, but great resource group on FB)
- The Arthritis Foundation (check out the JA family network – JAFN)
- The International Autoimmune Arthritis Movement (IAAM)
- Chronic Curve (has adult onset Still’s, but very important resource & amazing person)
- Still’s Life (even though Laura died in December, her page is the best resource)
- For the Love of Laura (facebook page run by Laura’s mother in law in her memory)
- William’s Wish (FB community in memory of William, a boy who lost his Still’s battle)
- Juvenile Rheumatoid Arthritis (FB)
- CARRA
- High 5 Club
- Arthritis Research UK: Centre for Adolescent Rheumatology
- Juvenile Arthritis Association
- Living with Juvenile Arthritis
- Arthritis Ireland
- Creaky Joints
- JIA Mom’s Blog
- A Different Dream
- Children’s Chronic Arthritis Association (UK)
- Treatment Plan Adherence
- JA Management: Educating your child & transitions
- Growing up with JA: Help your kids take an active role in their health care
- Parker’s Purple Power Playa Pounding JA
- American College of Rheumatology: Arthritis in Children
- Arthritis Foundation: Juvenile Arthritis
- Arthritis Foundation: School Success
- Arthritis Foundation: Additional School Resources
- CDC: Childhood Arthritis
- Genetics Home Reference: JIA
- Arthritis Today: Juvenile Arthritis
- Orpha Net: JIA
- Kids Get Arthritis Too
- Immune Deficiency Foundation
- Our Fight with Systemic Onset Juvenile Arthritis (FB)
- Ezra’s Journey with Systemic JIA (FB)
- Systemic JIA Network (FB)
- Jordan’s Pink Angels (FB)
- I Stand All Amazed
- Me, Myself, and Still’s Disease
- The Sloan Siblings JRA Journey
- Life Autoimmune
- Bevin’s Adventures with Juvenile Rheumatoid Arthritis
- The Tiny JRA Warrior
- Amelia June’s Battle with JIA
- Eric’s Journey with HLH and Still’s Disease
- JIA 101: Welcome to the Club slideshow
- Navigating the JA World slideshow
- Sports and JA slideshow
- Systemic JIA: Where are we? slideshow
- Taking care of yourself: A parent’s guide to mental health, stress reduction & parental guilt slideshow
- Rylan Simoes’ Systemic Onset Juvenile Idiopathic Arthritis (FB)
- Still’s Disease YouTube playlist compiled by yours truly
- My FB pages (NSSD) (personal)
- My twitter page
- My tumblr page – I follow a number of people on there with JA, but some of their content is adult-ish
- My Pinterest page
Thanks to everyone who pointed me towards these resources, and all of you who continue to fight for kids with types of autoimmune arthritis. If you have any to add, please do so in the comments!