Tuesday, December 22, 2015

Terminology Tuesday: TRAPS


TRAPS stands for Tumor-necrosis-factor Receptor-Associated Periodic Fever Syndrome. It is in the Periodic Fever Syndrome family, which is also where Systemic JIA has been placed lately.

The syndrome is an inherited one due to a malfunction to the TNF protein.


Since the symptoms of TRAPS generally fall within the rheumatology realm, a rheumatologist is generally who primarily treats the syndrome. Symptoms can include muscle and joint pain, fevers, rashes, uveitis, stomach upset and GI issues, and more. It can take a long time to get a diagnosis with TRAPS, sometimes up to and over ten years.

Medications like Enbrel and Humira can be effective, but Kineret and other interleukin-based medications have been seen to be more effective lately.

If you or someone you know has TRAPS, making sure to get the proper treatment is key as it can easily affect your kidneys and cause chronic kidney disease.

Sources: 

https://my.clevelandclinic.org/services/orthopaedics-rheumatology/diseases-conditions/periodic-fever-syndrome

https://www.rareconnect.org/en/community/traps-syndrome/article/traps-infographic

http://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Tumor-Necrosis-Factor-Receptor-Associated-Periodic-Syndrome-Juvenile


https://www.pinterest.com/aalliancesaid/traps-tnf-receptor-associated-periodic-syndrome/

http://ghr.nlm.nih.gov/condition/tumor-necrosis-factor-receptor-associated-periodic-syndrome

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