So I was checking out one of my new favorite blogs, The Single Gal’s Guide to Rheumatoid Arthritis, when it occurred to me that I hadn’t ever really checked out her links section. One of the blogs that I found very interesting there, The Truth About JRA, is really insightful. This young lady is basically medicine free, how we’d all like to be. I borrowed the following survey from her.
15. The hardest thing to accept about my new reality has been: Well, again, I haven’t really had a new reality. I am having to come to terms with having to lean on the people around me more than I am used to when times are difficult. I hate needing help. 16. Something I never thought I could do with my illness that I did was: probably anytime I have a day out without feeling a major amount of pain afterwards or during.
17. The commercials about my illness: make medicine the end-all, be-all of solutions. You can’t just treat the physical pains (especially with meds that have terrible side effects). 18. Something I really miss doing since I was diagnosed is: playing and running around without worrying how badly I am going to pay for it later. I missed so many years of school and friends.
19. It was really hard to have to give up: more of my independence recently. 20. A new hobby I have taken up since my diagnosis is: learning as much as I can about my disease. I try to eat things that are less able to hinder my body, but that doesn’t always work as a college student with two jobs.
21. If I could have one day of feeling normal again I would: probably cry for a good hour or so… then spend time trying to do things around the house and where I live that are difficult for me. 22. My illness has taught me: that every good day is a gift to be embraced and spent wisely. 23. Want to know a secret? One thing people say that gets under my skin is: … I hate it when people talk about how weird I am without knowing the whole story.
24. But I love it when people: try to cheer me up with humor, hugs, and some Ben & Jerry’s.
25. My favorite motto, scripture, quote that gets me through tough times is:
Start with one step.
The first step is hardest of all.”
-“You Might Die Trying” by Dave Matthews Band
26. When someone is diagnosed I’d like to tell them: Don’t worry. Work hard and stick to your guns and everything will be alright in the end. Learn about your body and know your limits, but push them ever-so-slightly. Don’t be afraid of telling people about your disease. They will understand you better. 27. Something that has surprised me about living with an illness is: how unaccepting and judgmental people can be before they know about my illness. Also, I don’t have to give up everything that I love to do in order to be pain free. Some things just need to be reworked.
28. The nicest thing someone did for me when I wasn’t feeling well was: just to take care of me and understand that I am in pain. 29. I’m involved with Invisible Illness Week because: Well, I’m really not… yet. 30. The fact that you read this list makes me feel: like you might be able to understand me and my problems in general as well as JRA.