Thursday, August 25, 2016

Featured on Kids Get Arthritis, Too!

Hey hey hey, guess what? Yours truly was just featured on Kids Get Arthritis, Too!

PS I seriously cannot believe the company I am in. Check it out:

Jen Horonjeff is pretty much the bomb dot com and runs the Young Adult track at the conferences with Jenn Ziegler (additionally, also the bomb dot com). Ana? She's on Broadway, starring as Gloria Estefan in On Your Feet. Todd is a badass racer. Elizabeth has done a lot to raise awareness of arthritis. Margo is a talented and amazing musician who also wants to be a doctor. Liz is a clinical social worker who works with those of us living with chronic illnesses.

It's fine. I'm totally not crying right now at being included with this group of amazing people.

Wednesday, August 24, 2016

9 quotes to inspire you to bounce back

One of my favorite words in the English language is resilience. Merriam-Webster defines resilience as:
1:  the capability of a strained body to recover its size and shape after deformation caused especially by compressive stress; 
2:  an ability to recover from or adjust easily to misfortune or change
When I think of resilience, I think of myself and other patients facing lifelong illness-related issues. Resilience is the perfect word to describe what traits we possess without using words like strength, which are too commonplace and far less meaningful.

Here are a few of my favorite resilience quotes - enjoy!

“I am not what happened to me. I am what I choose to become.” 
-Carl Jung

“My scars remind me that I did indeed survive my deepest wounds. That in itself is an accomplishment. And they bring to mind something else, too. They remind me that the damage life has inflicted on me has, in many places, left me stronger and more resilient. What hurt me in the past has actually made me better equipped to face the present.”
-Steve Goodier

“Resilience is, of course, necessary for a warrior. But a lack of empathy isn't.”
-Phil Klay

“Resilience is very different than being numb. Resilience means you experience, you feel, you fail, you hurt. You fall. But, you keep going.”
-Yasmin Mogahed

“Toughness is in the soul and spirit, not in muscles.”  
-Alex Karras

“Though she be but little, she is fierce!”
-William Shakespeare, A Midsummer Night's Dream

“You may have to fight a battle more than once to win it.”
-Margaret Thatcher

“The greatest glory in living lies not in never falling but in rising every time we fall.”
-Nelson Mandela

“It takes courage to grow up & become who you really are.”
-E.E. Cummings

What are some of your favorite quotes?

Tuesday, August 23, 2016


I had been toying around for a while with the idea of creating bracelets in order to raise awareness and show off how strong us patients are.

The other day I felt really adventurous so guess what?


They're stretchy and made of rainbows! Okay, that's what I tell myself, but the rainbow color is really nice. They say 'Not Standing Still's Disease' on them.

If you take a look at the sidebar to the right of this post, there's a spot to purchase them. They're $5 each with a $1 charge for shipping in the US and a $5 charge for shipping around the world. The shipping costs do not go up if you order more than one.

Right now I only have 30 bracelets, but will get more if there is a lot of interest in them, so please keep me updated! And I'd love to hear if you have other items or products you think would be fun to have.