Monday, November 30, 2015

Ways you can manage your medications better (and a sweepstakes!)

It's no secret that I love my PillPack.

I get my meds delivered every two weeks in convenient tear-off pouches. They have a great online system for me to manage my meds, including the non-packet ones like my inhaler and such.

The packets also say what's in them for each time you take them and include dosages which is really nice, especially when traveling.

Believe it or not, PillPack is not the only way to get super organized.

There are even apps that help dispense pills like Lumma!

Other apps like Medisafe, My Medical App, and iTriage can help track your meds as well, even reminding you to take them.

MyRa from Crescendo Bioscience is a great comprehensive app that allows you to track labs, symptoms, and medications.

And Arthritis Power from Creaky Joints can do this too (check out this previous post for more info).

Of course, sometimes the tried and true ways work best.

I found this beauty last year during Small Business Saturday in Branson, Missouri. Since I have PillPack though, I never use it anymore...

In the spirit of Christmas and passing on great things, I'm giving away this gorgeous pill organizer over on the facebook page. Why not come by and enter?

Friday, November 27, 2015

Get Freaky Friday: link roundup & more on #ChronicSex

Are you getting married but can't do regular wedding rings? Check out these alternatives!

Mental health issues can be crippling. If you're in love with someone dealing with anxiety or depression, definitely read up on them. It may surprise you when you learn that your partner's anxiety is why they work so hard or just how consuming depression can be.

Both of those can cause very real and awful physical pain too, so brush up on ways to support your loved one through that.

Making sure that you follow the six steps laid out by Arthur's Place - communication, picking your moment, preparing your body, foreplay, positions, and confidence - can make all the difference. So can sex toys!

Mariah is one of my favorite people, hands down. She wrote this great piece back in 2014 about how to initiate a conversation with your doctor about sex. It's a must read! She also has written great pieces about scheduling sex, how RA can affect your sex life, how to talk with your partner, and how to improve your sex life.

No matter your condition, you can have a great sex life. Rachelle Friendman lives with quadriplegia and still does! She also proves that you can still look super sexy, no matter what. After all, Oracle/Barbara Gordon from Batman has historically been sexy and disabled.

Beauty & confidence start from within, so make sure you work on your self-love & self-care.

There has been a standard in the media regarding depicting female versus male pleasure. Many movies that show females orgasming, etc, get NC-17 ratings instead of the R ratings movies showing men cum get. Perhaps, though, this is changing with Magic Mike, 50 Shades (BARF, but okay), and other films along with strong feminists who embrace their own sexuality like Nicki Minaj.

Speaking of orgasms, here are 23 facts about them that you never knew.

Idolizing virginity & purity and shaming sexually active youngsters does not do anyone any favors. In fact, those comparisons to chewed gum do tons of mental damage, especially when you consider that a large number of first sexual encounters are forced in one way or another. We should, in all honesty, begin sexual education far earlier than we do.

Come enjoy the cuddle sutra!

Oh, and by the way...

Thursday, November 26, 2015

Thankful (early 2015 year in review)

This year has been intense.

I started the year off with a new job.

And aced the HIPAA questions DUH
And hung out with Jason Kidd.

We adopted another piggie, Oreo, to bring our grand total up to three.

I bought a car!

And started therapy again, which has been amazing.

I met Cary Elwes, even though he was kind of a dick.

I got to watch Sammy go from the NICU to crawling all over.

I cut off all my hair.

I spent a lot of time with my sister in law before she moved to New York (!), including our tipsy birthday shenanigans.

I did two concerts in one day and got really nice comments on them.


I visited both sides of Florida, as well as California.


I gave a speech about how imperative it is to find your support system with depression.

I got to hang out and meet some of my favorite people (and beings) in the world.

We saw Amy Schumer and it was everything I wanted plus.


I went from never having been to any conference to attending three this year, and it was amazing. Each one brought me new insights into everything from being a patient to how physicians feel to what gaps I can fill, like the upcoming #ChronicSex chats.

Speaking of, I started blogging for Creaky Joints out of a fun conversation at the AI G8 conference in May.

I got two new tattoos...

Missy loves superheroes (and I love Batman), so with Sam's heart defect, this was a perfect combo. The Awkward Yeti is amazing.
I don't like 'hope' so I got believe because I BELIEVE I will be better
I started a medicine that like actually works *GASP* thanks to changing insurance & my rheumatologist.

And taking it everyday isn't as bad as I thought it might be, especially since I only had like two weeks of injection site reactions... as long as I stay away from my legs!

It's easy, too, knowing my inflammation markers look like a normal person's!

I started school again which has been interesting.

Gus is super helpful with my papers
I've helped Jaq get more comfortable being loved on.

I got diagnosed with a fun eye thing that is likely related to the dryness my body has.

Anterior Basement Membrane Dystrophy aka my cornea cells stick to my eyelid :( 
I started physical therapy again and have really gotten a lot stronger for it.

I got to meet and talk a bit with one of my favorite musicians, Say Hi.

I started a petition to get Lucy's battle with arthritis heard, only to get an angry phone call from their estate/licensing company and get interviews on major sites pulled/censored.

And I celebrated Arthur's birthday in such a different way.

Okay, I made cake because I always do, but it was different. Instead of being mad, I missed him. That constant and familiar pain being lessened and nearly gone is great!

But it's also scary. It removes the one constant I've had in my life, so it's weird.

Also, the Lucy news stories got taken down the afternoon before and I didn't get a full answer until the next week, so that put a damper on things.

It's been an interesting year all in all.

I wasn't expecting to be in California twice this year, but seeing Sammy sick and knowing that my sisser and my Missa needed me there made it so worth it. Missa needed silliness and a pizza-sharing friend. Kelsey needed my love and support. And I needed Sammy.

I loved seeing them twice this year.

Attending the conferences and working on projects with various organizations has really helped me to learn more about myself, about my dreams for the future and what I can do to get there. It's helped me make connections to get there, too, which is so important.

I have exciting plans for the next one, but I have to wait to talk about them GAH.

It'll be awesome though.

Speaking of awesome...