Wednesday, June 22, 2016

Are you ready for the #selfcaremvmt???

A while back, I wrote a few blog posts about self-care:

In each, I discussed how I was introduced to Self Care Catalysts through ePharma. Their upcoming movement centers around how important it is to care for ourselves as patients with chronic illnesses and to celebrate the moments where we have been able to care for ourselves.

Now it's time for the Self Care Mvmt event in Toronto! 

Thanks Wikipedia!
You best believe this Wisconsin girl is going to have a heck of a time near the Hockey Hall of Fame even if the Blue Jays aren't at home. I will also bring back as much maple syrup as they allow me to because I need the good stuff to make some maple donuts. For not having grown up in Wisconsin, I really fit in here. WOW.

Mostly, I am just so stoked to be spending time with my pals Lene and Kristin.

Please check out the tag #selfcaremvmt on Twitter for more fun stuff, especially Monday night. You can also catch up on stories that many chronic illness peeps have shared here.

Friday, June 17, 2016

The National Mobility Equipment Dealers Association

This is a sponsored post written by me on behalf of National Mobility Equipment Dealers Association for IZEA. All opinions are 100% mine.

With different types of arthritis and other chronic illnesses, it’s not always easy to know from one day to the next how our mobility may change. One of the most difficult things that those of us in wheelchairs face is getting vehicles that are wheelchair-accessible.

Today, I would like to introduce you to NMEDA, the National Mobility Equipment Dealers Association.

I was originally introduced to them at the Abilities Expo in Chicago last year. NMEDA is a non-profit originally based in Florida that focuses on helping those of us living with mobility issues to live our fullest lives possible by providing a safe place to acquire mobility equipment. Since 1989, they have gone national in the United States and Canada. Now there are over 600 members of NMEDA, all focused on that same goal.

One of the things that makes NMEDA great is their Quality Assurance Program (NMEDA QAP).

The QAP is the only national recognized accreditation program in the mobility equipment industry. This program helps to keep quality high in order to protect the consumer. Requirements of the program include having a certified welder if modifications are done on site, undergoing annual audits, having a dedicated contact number for mobility-related issues and questions, and making sure to have their shops and dealerships ADA-compliant.

The biggest benefits for customers working with a NMEDA QAP dealer include: in-person evaluations, specialized training of equipment, 24-hour local emergency roadside services and so much more! 

I honestly had no idea how many amazing accessible options there were for car-related accessibility issues. NMEDA mobility equipment dealers offer wheelchair ramps, hand controls and steering aids, transfer seats and seating solutions, wheelchair securement and tie downs, scooter lifts and special acceleration and braking solutions for adaptive vehicles.

My great grandmother had MS, but she did not have an accessible vehicle. Due to this, she was quickly forced from being in the driver's seat to always being a passenger in my lifetime... She hated it. It's amazing to see the options that could have been available to her if she was alive today.

She would have loved having this freedom.

I think she also would have loved the great financing options that NMEDA has compiled. Part of why she didn't have an accessible vehicle is because they are so expensive. NMEDA, though, has information on state agencies, public assistance, grants, and ideas for crowdfunding on their site.

NMEDA has worked closely with organizations such as the Christopher and Dana Reeve Foundation, the National Multiple Sclerosis Society, and the Association for Driver Rehabilitation Specialists. The testimonials on their website help to highlight this important work as well.

One of the things that I love about NMEDA is that they take the time to recognize leaders in the industry who have made a difference for those of us with mobility issues through their Hall of Fame. Currently, there are 18 people in the hall of fame, all of whom have helped people with mobility issues to live well through their innovations and non-profit work.

Make sure to check out the vast mobility- and illness-related resources they have on their site.

Photos were provided by NMEDA.

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Monday, June 13, 2016


Be honest with yourself about what you most want to change in your life and why you haven't done this yet. Then identify one thing you can do to work toward this today, and do it. 
How have you been protecting yourself by lying to yourself? How has lying to yourself in this way actually hurt you? 
What would your ninety-year-old self tell your current self about making a change, starting now?
What did you learn about yourself, and what did you do to begin creating change?
This is definitely a fitting question for someone at the beginning of a big journey. 

I am nervous as fuck, but I also know that I've let that stop me in the past from doing things that I would have enjoyed and excelled at.

That's why I'm taking this leap now.

After September, we'll see if Chronic Sex goes anywhere further than jut a chat and podcast. Even if it was only that and it brought in no money, it would be worth this time off to develop it and to focus on my health.

This week, I aim to finish up my business plan and work on securing some more guest posts for the CS site. I'll also work on getting the podcast in motion - if you'd like to help, check out our Patreon page.

By taking this leap, I know that I will have little regrets about this growing older.

I'm just really excited to fully dive in.