pic of Kirsten, hands on her head as though she wants to pull out her hair; she is somewhere between screaming and laughing, and only visible from the chest up; she has on black jeans, a gray tee shirt with white text "Let's talk about sex - Vibrant"; her hair is reddish-purpleish

If you love sarcasm, guinea pigs, musical theater, and changing the world, you’re in the right place! This blog aims to discuss realistically the challenges facing those living with chronic illnesses in today’s world, ways to change the healthcare system, and how we can live our best lives while rocking House, MD replica canes.

There are some regular theme days where posts center on ideas like medical care (Medical Mondays), terminology (Terminology Tuesdays), silly things (Wacky Wednesdays), mental health (Therapeutic Thursdays), and our relationships with ourselves (Self-care Sundays).

Side note: If self-care and relationships with chronic illnesses interest you, make sure to check out my blog with Creaky Joints or Chronic Sex.

In the past, I’ve been featured on BlogHerEveryday Health, and more! I also regularly work with Creaky JointsJoint Decisions, and the Arthritis Foundation among others.

Want to work with me? Please check out my media kit or my portfolioMake sure to also to read my disclaimers and page for companies.

Who am I?

My name is Kirsten. I’m a writer and I thrive (sometimes) with chronic illnesses. 

I also love the ukulele.

Kirsten playing a ukulele outside in front of a building on a summer day

I’ve been ill for most of my life. I fell ill with Systemic Juvenile Arthritis or Still’s Disease in November of 1993. Since then, the diagnoses have just kept coming – they sit at 16 and counting as of January 2018. I am now diagnosed with fibromyalgia, psoriasis, patellofemoral arthralgia in both knees, anemia, scoliosis, asthma, gluten intolerance, depression, anxiety, and post-traumatic stress disorder.

B&W photo of a masc in a suit and femme in a wedding dress dancing

I started NSSD in 2009 when my husband (referred to here as ‘T’) noticed that I wrote more and more about health over on my first (and, thankfully, defunct) blog. I wrote that first blog to help T and I both learn about my SJIA. In the process, I found my true calling – talking with and helping my fellow chronically badass peeps.

If you’d like to contact me about anything I’ve posted, the possibility of guest posting, advertising space, product reviews, or more, please email me at kirsten@notstandingstillsdisease.comI only support things I believe in, so don’t feel too bad if I decline any offers!


Some posts about the work I do across the healthcare/chronic illness community: