blog carnival

An Idea!

The boyfriend had a wonderful idea for a question to share!

I know! Pretty cool, huh?

He was thinking about a cure for autoimmune arthritis and what it would look like. What would we, as people dealing with these diseases, be okay with? Would it be a medication that stops any further damage, but halts you where you are? Would it have to reverse all damage? What if you still had tough days, but fewer of them?

In a perfect world, obviously, we all want to be completely ‘normal’ – but what would we accept?

I know I’m biased, but I thought this was such a great idea that before I wrote about it I would love to hear what others have to say too!

So! Please send me your ideas! I would love to share them, kind of blog carnival-y. If you have a blog, I’d love for you to post there and then send me a link to that entry so that I can showcase it in my response! If you don’t have a blog, feel free to start one! Oooor just email me your thoughts 😉

Oooh, but just one thing – I’d love to post this in a timely-ish fashion soooo we should set a deadline! How about I need submissions by next Sunday, March 18th, by midnight pacific whatever (savings?) time.

Thanks in advance for your input! I look forward to reading your ideas!

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  1. Heather says:

    If all of my autoimmune disorders/diseases, etc. were *improved* to an extent where the pain would be manageable, I would still not be happy.

    Unfortunately I would have to regain the ability to walk, would have to go through several surgeries that I'm needing at the moment anyway, and there would have to be a surgery to fix some of the damage created by autoimmune/inflammatory and extraordinarily painful Sacroiliitis.

    My pelvis becomes more and more deformed, starting at the SI Joints.. then increasing spinal damage I already have. This would have to be halted and fixed as well as possible.

    My RA, Lupus, Hashimoto's, and others would have to become manageable, and some of the damage would need to be undone, or surgically improved.

    If surgery were possible for many of my autoimmune arthritis and other autoimmune diseases, it would be a possibility of a greatly increased quality of life.

    At this point, I need several joint replacements, spinal surgery, nerve and tendon/ligament & bone surgery at the moment.

  2. Anonymous says:

    Hi what a great question and wouldn't a cure be great!

    I think primarily I would want the diseases to stop attacking me. That would lead to less pain and less medication.

    I wouldn't know what normal is know as my disease has shaped who I am and my life. How scary to be able to do everything, it would surely lead to partying and living too hard.

    My pain Doctor said to me last week 'I would like to hold you in a vat of steriods until you were ok.'
    Just think how great you might feel after that cure…

    For my husband he would like the body I had twenty years ago ( the one not deformed, puffy, blotchy, weight gain due to meds,not sleeping, painful) but with the wisdom I have about life know. That would be an acceptable cure to him.

  3. Anonymous says:

    I never thought i coulf be this sad and feel so helpless and worthless this much in my entire life….. but happy to be alive for my kids

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