Day 2: Tony Snow was a smart guy #NHBPM

Today’s prompt is to pick a quotation and run with it.

The secret of learning to be sick is this: Illness doesn’t make you less of what you were. You are still you.

-Tony Snow

Oh Tony, but what if you fell ill so young that you didn’t really have a ‘you’ to begin with?

I always talk about how I’m lucky to have fallen ill at such a young age, how I wasn’t like a high school track star who fell ill or a marathon runner or an archaeologist in the desert climbing up to perilous caves for excavating. I was a little girl in kindergarten. In fact, I fell ill on November 14th, 1993. In a fortnight, my illness will be 19.

It’s hard to think about the kind of person I might have been without this. Surely I would not have been picked on every day in school for being heavier, because I would have been able to be more fit. I wouldn’t have gotten weird looks for having an ace bandage on for one day. I would have been able to participate more in PE. I would have finished graduate school and probably have a better job than the one I have right now. I’d feel a hell of a lot more useful that’s for sure.

But I am me, the little girl whose sexual abuse started not too long after the onset of this odd illness – the little girl who was homeschooled and finished ‘normal’ high school with honors, with an international baccalaureate degree, and as a valedictorian. I think that was all related to my illness though. What do you do when you can’t play sports? You spend time with friends and, if they’re brainy, you all end up as valedictorians together.

I like who I am and I know that the decisions I have made have led me to where I am right now. It is always hard to wonder what I would have been though without my illness.

My favorite thing about social media #NHBPM

November brings with it the start of National Health Blog Post Month and since I’ve been lax on updating things, I figured it wouldn’t be a bad idea to have to write a post every day this month.

Today, I had the choice between ‘why I write about my health’ and the topic you see before you. Since I wrote about the former earlier this year, I figured I wouldn’t bore you with it again 🙂

To me, social media has opened up a whole new life. At first, I used these things to stay connected with my extended family 2200 miles away and my high school friends who, six years after graduation, I still miss dearly. But as I did start to share the battles I go through with my illness – and the battles I’ve gone through since childhood – I was able to meet so many people who helped me to realize that I am not alone. For me, social media is an online health community. On twitter, I will rant about things with my family, wedding planning, and more – but the bulk of what I share all has to do with the health community that I am a part of.

Social media not only allows me the ability to watch my cousins grow up through pictures posted on facebook but also lets me ask questions about situations and in reality has probably saved my life. Back in July when I had C-diff (UGGHHHHH) really the only reason I got help was because a number of friends kept pushing me, kept checking on me, and really forced me to go – as much as you can from 9 hours away.

And even more than that, social media has given me a family that I did not have before. My extended family is full of people who share too much with each other and gossip and it ends up being a very catty situation. My social media family never judges me like that and they are always there for me, whether they’re in England and I’m up at 4am or they’re just an hour away from me.

Without social media, my only real rock in my support system is my fiance. I love him to death, but we all need more than one person to share woes and accomplishments with sometimes – and to push us when we’d rather not move.

So, with that, I love you all and you’re awesome 🙂