This post is inspired by this post.
It is really hard to be sick all the time – physically, mentally, emotionally. It just plain sucks. I wish there were better words to describe it.
But one of the worst things to deal with is the pressure to feel better, to get better and stay better. Having a support system can be one of the best – and hardest – things to deal with. It’s wonderful to have those special people to lean on when you need to. And let’s face it, I need to often. But it can also be very hard to handle.
My support system is made up of family, ‘adopted’ or blood. It is so hard to feel sick all of the time, not just for me but for them. I want to go and do and be a part of the world so much and sometimes I just can’t… and often that means the people around me don’t either. It can lead to feelings of guilt or even wondering how long the relationship can last/stay good as you stay sick/get sicker.
It’s comforting to know that these are all normal feelings for those of us often sick. I was struck in particular by this comment on the post mentioned above, specifically this:
I think it’s important for us to remember that even though we didn’t have the choice to be sick, they have the choice to be here.
And somehow that makes fighting all these obstacles worth it.